No more Zyprexa?..
Jake is finally off Zyprexa. He went from 15mg. last summer, down in 2 1/2mg increments every few weeks, until he finally had the last of it a week or so ago. Now he is having a pretty rough time with anxiety, as has always been the case after each drop. It lasted perhaps 2-3 weeks, if I remember correctly.
This time it's that his "belly hurts" and "breathing is hard". We're trying his food on gravity rather than pump (G-tube) to see if the reflux might be reduced (he gets meds for this), but with no trunk control, it's awfully hard to get him or keep him in an upright position. He slumps no matter what. Also, the secretions we're getting aren't that significant. Foamy, so he's probably breathing too fast and aerating the stuff in his trach, but nothing infected or ugly. Or copious.
So, we're probably dealing mostly with anxiety, but it's really rough this time. Does anyone have experience with getting off long-term use of this drug and have any advice for us, or maybe give us an idea of how long this exaggerated anxiety might last? Poor guy–it just seems like there's nothing helpful we can figure out to do for him.
Thanks,
Tana (Mom)
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